Plot 47A

by Cassie McDaniel

June 8, 2012

New Events and Publications

So many great events are happening in the next little while, too many to tweet, so I thought I’d share them here. They are not all related to design in healthcare, but they are related to design, and I imagine a little more crossover between industries would be good.

Upcoming Events

Weapons of Mass Creation Fest – June 8-10, 2012

I’m road-tripping to Cleveland this weekend with some friends for the second year in a row to WMC Fest (it’s becoming an annual tradition for us). This is the kind of (un-) conference that speaks to me: small, creative, music and design prominently featured, not prohibitive by cost, attended by inspiring, down-to-earth people. This event is full of grass-roots magic and local pride. You get the sense that you can really contribute something, no matter who you are or where you come from. Visit the site or say hi to @wmcfest or better yet, drop everything and join us in Cleveland. If you’re already going, make sure to say hi. I like knowing people face-to-face.

North by Northeast Interactive panel presentation – June 14, 2012

I’m really excited to be a part of a panel on “Feedback” organized by Brett Harned, project manager extraordinaire from Happy Cog. His fellow Happy Cog colleague, developer Jenn Lukas, will be throwing candy at people, and Travis Schmeisser, Senior User Experience Designer at 80/20, will also be weighing in on this interdisciplinary smorgasbord. If you haven’t bought a ticket yet but would still like to attend, let me know, I can get you a good deal.

The “F” Word: Feedback
Date: Thursday, June 14th
Time: 9:30 to 10:30am
Where: Meeting room Regency C (Hyatt Regency on King)
More info

Pecha Kucha Night Toronto – June 14

I’ve done two Pecha Kucha-style presentations before (20 slides automatically progressing after 20 seconds each) and it is hard work! Which is why I appreciate and would like to promote my friend Vivien’s efforts to raise the profile of this event across Toronto. It’s huge in Japan and could be bigger here. Always really fun to attend, interesting and eclectic presentations. This event will include my husband Mark Staplehurst‘s first go at this style of presentation (he’ll be talking about language and how it shapes culture), and our talented friend Linda Nakanishi who is presenting on Infographics. See you there?

Date: Thursday, June 14th
Time: 6 to 7:30pm
Where:NX Lounge Stage (Hyatt Regency on King 2nd floor) – free and open to the public
More info

IXDA – July 2012

Bruce Esrig, co-organizer of IXDA northern New Jersey, will be hosting an ongoing series of events to discuss design in healthcare and he has graciously invited me to participate. As it is a private group, ping him if you would like to get involved. They are on twitter (@ixdannj) and have a Meetup site. I’m excited to see where this goes.

New Publications

Distance Quarterly – June 2012

I have an article being published in the upcoming issue of Distance, a new publication from my friend Nick Disabato which showcases long-form articles about design and technology. My piece, “The Embedded Designer” uses my own experience of beginning to work in healthcare as a case study for embedded designers.

A ton of love goes into every detail of this publication, whether printed or epub. The articles are well-researched and worked on for months before publication. I’d flatter myself to say the authors are all brilliant (but they are, and I’m lucky to be in their company!). Definitely worth a read. Check it out and subscribe.

Ferocious Quarterly – June 2012

Ellis Latham BrownI wrote a little piece of fiction based on the illustration to the right by Ellis Latham-Brown. Writing to an image is a difficult thing to do (especially in a weekend) but I’m extremely proud to be featured in such a beautiful quarterly. The theme of the issue is “Survival” and my story is called “The Witness and the Bear”. Each issue comes with a pocket-sized book and a lovely badge and poster. You can buy a copy or subscribe here: http://fe.rocious.com/

May 31, 2012

eHealth 2012: Day 3 Sketch Notes

Thank you for all the nice words about my sketch notes this week! Certainly makes it easier to keep doing it, even if the speakers think I’m not paying attention. Someone said I should make postcards out of these. Would you want a set?

Here are the final day’s notes, my favorite of the three, I think. Enjoy!

May 30, 2012

eHealth 2012: Day 2 Sketch Notes

Today’s notes are a little lighter, admittedly because my colleague and I decided to explore Granville Island in the afternoon. Looking forward to doing tomorrow’s though. Join us at Joe Cafazzo’s talk on mHealth for Chronic Disease Management at 1030 am before we catch our flight back to Toronto. If you’ve liked the sketches so far, do come say hello…

May 28, 2012

Designers Leaving Healthcare: Why?

I’ve been surprised that most of the time when I mention I’m a designer working in healthcare, another designer usually pipes up that they too used to work in health. Their reflections, however, are almost always past tense.

In response to last week’s post, two friends on twitter (who both used to work in healthcare) responded with an interesting exchange I thought was worth sharing.


My original tweet:

@cassiemc (Cassie McDaniel):
*New blog post* The one thing healthcare needs to do today: Hire a freakin’ designer! http://t.co/LbPqAjKd #hcsm #healthcare #design

@ghostpressbed (Derek J. Kinsman):
@cassiemc @ajkandy @myzipcare @ShimCode @JosephCafazzo @pdurginbruce @BentoMiso having worked in healthcare as a designer I completely agree

@typodactyl (Sharlene King):
@ghostpressbed @cassiemc is the problem really hiring designers? in my exp, the problem was listening, respecting, and retaining us.

@ghostpressbed (Derek J. Kinsman):
@typodactyl @cassiemc it’s a bit of both.

@typodactyl (Sharlene King):
@ghostpressbed @cassiemc There’s an amazing amount of talent in healthcare right now, but talent is worthless without voice.

@typodactyl (Sharlene King):
@ghostpressbed @cassiemc And I definitely left healthcare feeling bitter about the lack of respect and ethics.

@ghostpressbed (Derek J. Kinsman):
@typodactyl @cassiemc me too. I left healthcare cause everyone treated me like the guy who knew how to use Photoshop.

@ghostpressbed (Derek J. Kinsman):
@typodactyl @cassiemc but, I still think of ways my current work can help out in healthcare.

@typodactyl (Sharlene King):
@ghostpressbed @cassiemc Yeah. Honestly, I would return to healthcare if I had more power to effect change.

@typodactyl (Sharlene King):
@ghostpressbed @cassiemc But healthcare is particularly slow to culturally evolve. Some changes you have to cycle out the old for the new.

@ghostpressbed (Derek J. Kinsman):
@typodactyl @cassiemc there’s definitely a lot of factors to deal with. But, that’s all part of the challenge.

@typodactyl (Sharlene King):
@ghostpressbed @cassiemc The answer: the three of us start a design-centered healthcare agency? #maybeserious


Is that the answer? Do we have to start from scratch in order to attract (and keep) designers in healthcare?

May 18, 2012

The One Thing Healthcare Needs to do Today



“Unlike the interstate highway system, which did produce smooth roads across state lines, healthcare wasn’t designed. It just happened.”

– a two year old blog post by Jay Parkinson

Over the last few weeks, through recruitment efforts and heavy workloads, I’ve been wondering – how do we get more designers in healthcare? I need help!

This leads me to one of the most clearcut, actionable things healthcare providers can do today to begin to begin to turn this mess around:

Hire a designer, already.

It seems to me that design in healthcare is over-hyped and undervalued at the same time. People talk a lot about how design can make such a big difference in creating new and better systems for healthcare delivery (or evolving existing ones), but from conversations I’ve had, most people working in the industry couldn’t tell you the first thing about how to implement good design. This needs to change.

[Note: Healthcare Human Factors are hiring a design intern. Send me your portfolio!]

Why to hire a designer

The design ecosystem in healthcare, or lack thereof

Despite a hoard of designers graduating every year, design remains an insular industry. I would bet that most fresh young designers’ first jobs are at ad agencies (mine was).

Ad agencies have clear advantages over healthcare, mostly that they allow young designers to build a portfolio with brand recognition, increasing a designer’s credibility when they are looking for the next job. The designer’s portfolio is more important than anything; it is more important than a degree, than client lists, and arguably more important than who they know.

At agencies, the budgets are large enough to bear the burden of first mistakes and the ad agency ecosystem is filled with other experienced designers and art directors and creative directors from which to learn. This does not exist for design in healthcare.

That is a problem, because how can we attract designers to healthcare if they cannot see where they would fit in?

I also hear a bit of hm-ing and ha-ing about whether or not an organization would have enough work to justify a design position. I don’t have a lot of patience for this response because the need for design is so blatant, not only to me but to every other designer I’ve ever talked to about healthcare. So I don’t really care who you are or what you do – the answer is Yes, of course you have enough work to support a design position. Here’s why.

Why hiring a designer is a good investment

Everything that is manmade is designed, some more carefully and consciously than others. Your iPhone, of course, was deliberately designed. Clothespins were deliberately designed. The medical records systems that many doctors use now, or insulin pumps for example, were perhaps not so deliberately designed.

Healthcare delivery will improve when we consider the human experience in every aspect of what we do – delivering care, procuring devices, envisioning the future – not only for patients but for providers working within this often necessarily complex system. It has been my experience that any problem that is approached with a careful and considered eye (a design eye – be that visual or design thinking, whatever you want to call it) will improve, if only for that extra special attention. This is especially true if it is meant to communicate information to someone else, as most healthcare endeavors do.

From device interfaces for prevention or monitoring and medical records systems to posters and business systems, these are complex problems that can use the extra brain power. Even the way we communicate who we are as healthcare providers could be approached differently given the highly specialized communication skills of a good designer.

The number of applications for design within healthcare is infinite.

Why hiring a designer is a safe investment

“Those days of hiring for one skill-set are long gone.”

Joe Cafazzo (director of the Centre where I work) recently said this during a panel I was on about UI design at Apps for Health. He was speaking in response to a question about hiring specialists (therefore needing three designers instead of one).

While I think hybrid designers who are versed in many skills are increasingly common, there are still a huge number of designers with deep experience in one area. I can’t tell you whether you will find a specialist or a generalist because designers’ skill-sets vary so widely.

You should be aware though that it requires a huge body of knowledge to be familiar with the ins and outs of print design, as well as web design, as well as mobile design, as well as (more often than not) front end coding, yet many designers today can do it all. These unicorns represent a luxury of abundance most people in healthcare don’t even know they have. I don’t mean to bemoan the fact that designers work hard (of course we do along with everyone else in 2012), but I do mean to say that these wide skill-sets make hiring a designer a pretty safe investment.

If big design projects dry up, a good designer will find something to create, perhaps a promotional poster or video, an infographic, an icon set, or some other way to contribute to the working culture. We designers live for this stuff.

Design and healthcare are at a convergence. This is a space people are interested in for several reasons: there’s a lot to do, small changes will make a big impact, we have a real opportunity to help others.

It is becoming clear that traditional design agencies (and startups) are willing to tackle healthcare challenges, which makes them – like it or not – competitors. I think it’s time healthcare organizations, who have such amazing human resources in other fields, do those other employees justice and hire someone that can speak a human, visual language and show others just how effective your organization can be.

How to hire a designer

If you’ve never worked with designers, it can be a challenge to know who is the crème de la crème, and who doesn’t really have the chops. How do you know if they’re any good? One thing is certain: Most of the time, a designer’s hire-ability is not relative to the number of little letters after their name or even the number of years on their resume (I’m surprised to see designers have resumes anymore).

A bit of poking and prodding can help find the best candidates for you.

Skills to look for

As I have already mentioned, design may seem like it’s just slapping on a veneer, but there is depth and complexity to multiple subject areas within design. Some people will have strengths and interests in particular areas so it helps to know what kind of holes in your team’s current skill-sets that you are looking to fill.

  • Typography – This is one of the clearest ways to pick out experienced designers from amateurs. Do they use more than a few typefaces in a layout? Is type organized neatly where it counts? Do you get a clear sense of what the page is about when you first look at it?
  • Layout – Can they take complex sets of information and organize them in ways that are understandable? Do they experiment when possible, where content needs to make an impression?
  • Branding – Ask your designer the concept behind the logo. This should give a sense of how much thought they put into their design, whether they have conceptual strengths or if they are just making it look pretty. Try not to fall for the latter.
  • Presentation – How does a designer present themselves? Can they speak eloquently (and simply) about their creative process? Are they inclusive or do they display a big ego? They same way you would with any other employee, ask how this person would get along with the rest of the team.
  • Extra-curriculars – I don’t know an ad agency that would hire a designer without some kind of presence on social media or on a blog, unless they had a killer portfolio, and I mean killer. Why should you expect anything less?
  • Details – Force yourself to notice the little things. Are their images pixelated or have jagged edges? Are the colours fully saturated and vibrant? Does their design make you feel something? Designers know that the portfolio is where their work should really shine, so they shouldn’t be skimping on the details there. The exception is when a candidate isn’t exactly looking for work and your connection with them is a bit more random. Sometimes these designers are real gems that haven’t had time to update their work.
  • Concept – Ask your potential designer to talk about their process. If they spend more time describing visual tweaks than the concept behind the piece, you may have a problem. In healthcare, if we really intend to make a meaningful transformation in healthcare systems, you will need a thinking designer, someone who challenges the way things are currently done.

The difference between an intern, a designer, and an art director

The A List Apart article “Art Direction and Design” by Dan Mall sums up the differences in detail. Practically speaking, an art director usually has more experience than a designer and can approach visual problem-solving from a macro level, understanding the whole picture and the intended message and emotion. The art director takes responsibility for that piece so that the designer can focus on the details. Both are important to good design, but this role should probably be filled first.

In my experience, though, it isn’t important to have the roles delineated. I find I work better on a much flatter organizational structure. I would guess most designers are similar to me in preferring creative collaboration over creative dictatorship (I think this is because critique is so important to design, but that is another subject).

On some levels, designers are unpracticed art directors, and interns are unpracticed designers. Everyone needs a bit of collaboration and feedback, so creating a culture suitable to creatives would be in everyone’s good interest.

[Note: Here's an earlier post I wrote about barriers to creativity in healthcare]

What about freelancers?

Freelancers are lovely. I was one not too long ago, still am one on some projects, and I love the freelance community and spirit of camaraderie. But from an in-house perspective freelancers serve a purpose; they enter the picture when your regular full-time staff cannot complete a task. Design, too, should be kept in-house when possible so that not only can designers learn your process and needs intimately, but so that design can be embedded into your product or service from an inside, core place. However, when your options are limited by time or budget, hiring a freelance designer is better than hiring no designer at all. The same hiring questions above still apply.

A few final notes


I’ve been thinking about how design is so specialized, and how designers can contribute to an organization’s culture and product or service offering, and have a few additional pointers.

Hire for the big picture

  • Hire someone who is passionate. Someone who gets mad at how inefficient Photoshop and Illustrator can be, but prefers them infinitely over Powerpoint.
  • Hire someone who loves the details. Hire someone with typography skills, who knows the difference between smart and straight quotes, who can name one or two of their favorite fonts that you will never have heard of, who knows the different implementation cases for em dashes and en dashes and hyphens.
  • Hire someone who can explain the emotion behind an interaction. Hire someone who feels things. Hire someone willing to do things a little differently.
  • Hire someone who fails. Someone who isn’t afraid to fail.
  • Hire an expert. Hire someone who knows the creative process inside out, an expert in visual thinking.
  • Hire someone who is infinitely curious. Hire someone who googles everything, who always has new ideas to bring to the table, who asks a lot of questions.

Places to look for designers or post positions:

Further reading

If all of this is a little overwhelming, keep reading. Keep going. This is important. I like how these next few articles relate to the startup world, as I think healthcare could use a bit more entrepreneurial spirit.

Most of all, good luck! May you find the best designers you’ve ever seen.


Did I miss anything? Have any good or bad experiences working with designers that you’d like to share? Have any good book recommendations for people looking to hire their first designer?

May 7, 2012

Guest post: Varuna Prakash’s review of the inaugural HFES Symposium

As I dust off the old blog here, I should thank my colleagues for helping me keep this going with a few inspired guest posts. Several of us at the Centre have been to various presentations and conferences lately, but as it goes when we are away from work, we spend a lot of time playing catch up once we return and often can’t find the time to share our experiences with the team.

As an attendee at such events, I know all too well how the momentum from being inspired by awesome presentations and other people’s hard work quickly drops off once we get back behind our own desks. And as a person behind the scenes of such events (whether organizing, speaking or writing about), I know all too well how much work goes into these experiences and how lovely it is when the conversations keep going long after the event is over.

So it is in that vein that Varuna Prakash wrote up what she got out of the recent inaugural HFES symposium, and she is a super smart lady so don’t be surprised to learn something from the following.

Varuna writes:


Reflections on the inaugural Symposium on Human Factors and Ergonomics in Health Care

It’s an exciting time for Human Factors in healthcare. Just over a decade has passed since the landmark Institute of Medicine report, “To Err is Human: Building a Safer Health System” made waves in the healthcare community and brought to light critical issues of preventable medical errors and patient safety. Since then, momentum has been slowly building for for the patient safety and human factors movement. Joe Cafazzo, our Senior Director of Healthcare Human Factors, uses an aviation metaphor to describe the situation:

“In the past 10 years, the patient safety movement has been like a plane taxiing down the runway. Now, in 2012, we’re just taking off.”

As an HF practitioner who only entered the field during this takeoff phase, I have a lot to learn. And what better place to learn than the inaugural Symposium on Human Factors and Ergonomics in Healthcare, organized by the Human Factors and Ergonomics Society (HFES) in Baltimore in March. The goal of the Symposium was to bridge the gap between human factors professionals and the healthcare community. Over 400 attendees participated (large by Human Factors standards), presenting a tremendous diversity and amount of work.

Breaking down silos.

One of my main takeaways from the event is that one rarely (if ever) sees HF engineers, medical device manufacturers, cognitive psychologists, designers, physicians, and government regulators in the same room. The confluence is tremendously exciting. The three-day Symposium had a varied mix of talks and posters on Medical Device Design, Patient Safety, and Healthcare IT – all put together by people open to this radical notion that human factors and usability matter deeply in healthcare.

Healthcare is a massive space, so effecting change really requires effort at all levels – top–down and bottom-up. Probably the most encouraging thing was to see people working across so many jurisdictions, from single physicians on a medical unit pointing out usability issues that had disastrous consequences for patients, to the federal government’s Food and Drug Administration mandating that human factors testing be performed on all regulatory submissions for medical devices.

Design thinking.

Another pervasive theme was that as a healthcare community, we need to challenge ourselves to allow more creativity into our design process. Most importantly, we need to force ourselves to always consider the user’s perspective. I went to two great talks by designers who have been doing just this. One group at the Royal College of Art in London worked with the National Health Service to redesign ambulances.

Image via Helen Hamlyn Centre for Design

Take a look at their incredible, thorough process of design and evaluation. The end result is a much roomier, accessible ambulance that allows paramedics to focus their attention on the patient rather than scrambling to grab supplies.

Another great talk was on redesigning Instructions for Use for at-home devices. That little folded instruction manual that most of us throw away? Picture an 80-year old with crippling arthritis using it at home. Picture a scared first-time patient trying to decipher which way is up on a scary device she has to jab into her thigh. It is easy to see just how important it is to get all of it right. The details matter.

We’ve come a long way, but we also have a long way to go.

Somedays, it feels like healthcare is racing forward. We’ve gone from complex machines with fiddly buttons and rotary knobs to touchscreen anesthesia machines and monitoring apps on iPhones. But while technology races forward, how does the rest of healthcare catch up? For instance, operating rooms now contain an astonishingly array of surgical and imaging equipment, all housed in a tiny, cramped room in a building that was only intended to hold a fraction of this equipment in the 1950s. How do we make sure that all this technology fits and works, instead of getting in the way?

Similarly, we now have extremely sophisticated patient monitoring systems that are integrated so that nurses can keep tabs on critical patients even from several rooms down the hall. But a downside of this constant monitoring is the very real danger of alarm fatigue. How do we design these systems so that they support our clinicians, rather than overburdening them? This was another interesting theme at the symposium – taking stock of new challenges introduced by rapid technological development.

Final thoughts

I’ll end with a thought broached by the keynote presentation at the Symposium, given by Dr. Lucian Leape, a founder of the patient safety movement. Although the days following his opening presentation focused heavily on medical technology and IT, Dr. Leape made a very human-centred point that established an important lens for the rest of the talks:

Healthcare, unlike any other industry of this size in the world, has institutionalized disrespect.

Whether this disrespect is literal (a surgeon being rude to a nurse, for instance) or more intangible (keeping patients waiting hours for their appointments, or leaving patients to figure out poorly designed homecare technologies), it is unacceptably pervasive in healthcare. And it is incumbent upon us – as human factors practitioners, clinicians, medical device manufacturers, designers – to fix the systems that enable this disrespect.


Big thanks to Varuna for sharing her thoughts. Did anyone else attend HFES? Did you see other stand-out projects or presentations?

April 6, 2012

Healthcare Experience Design conference

I shared a snippet or two of my sketch notes from Healthcare Experience Design conference last week, but I haven’t yet posted the full spread, so here it is! I’ve got my fingers crossed to work with mad*pow on making it an interactive, possibly linking the illustrations to the sound bytes or video clips they reference (an awesome suggestion from my fellow @ScrtDsgnClb members) and maybe even getting some posters done up. There’s much that I could do with this, but I wanted to share these while the talks were still fresh for those who were there with me in Boston.

Alas, here are my full notes. Be sure to click on the image for a closer look at the details.

Details:


How? Why?

Standing behind Jason during the opening keynote inspired me to try my own sketchnotes.

I was a little late for the conference opening, but lucky me I walked in and stood at the back behind Jason Robb who was doing these awesomely-large drawings, which inspired me to have a go myself. I ran into him later at the snack station and showed him my little notepad, and he enthusiastically told me to keep going.

Jason kept doing drawings throughout the day and posted them around the hall. Was cool to see them come alive as a set and to compare how we both interpreted the same talks, which points each of us chose to focus on. Sometimes our directions overlapped and sometimes they didn’t, which demonstrates both the beauty and the challenge of visual interpretations – we can both have the same input, hear the same words, but of course take something different away from them.

In terms of style and technique it was also interesting to see how I tried to go for the small bytes of visual or story-telling elements to try and capture as much of the talk as I could, and Jason seemed to focus on a few main points to better tell a single story. Jason was also drawing at a larger scale, admittedly more difficult than what I was doing, and he used post-its to take notes he could come back to later on. Mine was way less structured, but I was surprised by how little I felt I messed up just by doing free association and no planning.

I had trouble remembering how to draw some things on the spot though (eg. an island, a banana tree, a train, or Kermit the frog after one attendee actually asked Jonathan Bush a question in Kermit’s voice). I wish I had a picture of Here’s Jason’s drawing of Kermit, which he absolutely nailed. (Thanks @pdurginbruce for the link!)

I captured all my notes with my iphone and dumped the photos into one file, then organized the flow and edited the contrast on each.

One of the more tedious aspects was organizing all the images so they ended up in a solid block of drawings. It's not like text, where the images were in chunks and could flow easily from one column to the next. If the columns didn't end up equal in height, the entire poster had to be reflowed.

The first snippet I shared. I printed out the drawings in 11x17 and colored it in with highlighters, but couldn't get the same neon colors in photoshop, so I switched to a more subtle palette.

One more detail shot. The pink was inline with the HXD palette of pink and turquoise.

It was challenging to do all the illustrations while the speakers were speaking, to draw and listen at the same time, and I’m sure I’ve misquoted some things (esp. facts and figures). The main objective though was to capture the gist and emotion of each speaker, which I think I’ve done and in a more memorable way than straight-up text. It’s certainly more interesting to recall insights in this way after the event is long gone, and I think I’ll try to incorporate this practice into all my future conference-going.


Special thanks to Jason Robb for the inspiration and encouragement to try something new, and to Amy Cueva from mad*pow for my no-obligations press pass, and to my awesome job for enabling me to go.

 

March 14, 2012

Your patient is my father

As a carpenter, Dad has always had strong hands, even when in hospital.

Last week my oldest brother got a call at midnight from Doctor K that our father needed to go into surgery right away and that he had a fifty percent chance of surviving the procedure. My dad lives in Texas and was being treated in a hospital three hours from where he lives, but my brothers and I were even farther away in Florida and in Toronto. None of Dad’s family could be there immediately.

Thankfully, at three a.m. my brother got a follow-up call that Dad had made it through the surgery okay. A few days later my brother (and my five-year-old nephew) and I flew out to see him.

When you only occasionally see someone you love who is ill, you think every time you see them may be the last. I wasn’t immune to these thoughts during my trip to see Dad, but another motive for going was to get a handle on his prognosis and to help facilitate his care in whatever way possible. Most of all, we were thinking we could be advocates for him while he was too weak to look after himself.

It is to that end that I share this rather personal story which shows a side of the picture that is easily forgotten, especially by people like me who work in healthcare but not on the frontline. We talk about this side of the story – the patient perspective – all the time, but living it is a whole different reality.

One vision

My nephew drawing Grandpa a get well picture.

The healthcare system in Texas, as I imagine it is anywhere, was convoluted and frustrating and terrifying. At one point, I asked the nurses station how I might obtain my dad’s medical records for him. I literally had two nurses standing in front of me simultaneously telling me to do different things. (“Go upstairs,” said one. “No go downstairs” said the other. “On second thought,” said the first, “Call this helpline.” “They won’t tell you anything over the phone,” said the second.)

But this frustrating system was also miraculously effective. Certainly it saved my dad’s life. It works. But I can’t stop myself from thinking:

It could work so much better.

Steve Jobs surely felt the same way when he lay in hospital beds, redesigning hospital equipment.

Intubated, when he couldn’t talk, [Steve] asked for a notepad. He sketched devices to hold an iPad in a hospital bed. He designed new fluid monitors and x-ray equipment. He redrew that not-quite-special-enough hospital unit.

Unfortunately not all patients are so well-equipped, or even nearly as motivated as Jobs. It’s up to us in the Land of Healthy try to make things better for those in the Land of Illness. As much as it is the surgeon’s job to perform surgery, the nurse’s job to nurse patients back to health, and the pharmacist’s job to manage medications, it is my job to keep showing people how much better this system could be. This is the value of embedding designers into healthcare settings. Designers certainly do not have a monopoly on vision, but we have a unique capability to realize that vision.

From the patient and family vantage point, it is easy to see healthcare’s big flaws. But it is also easy to observe the complexity of good care and why it may be that change within hospitals happens slowly, and it becomes easy to think: Why mess with a system that works? Why indeed. Surely it is a wake-up call for me as a designer as to how challenging it is to bring significant change to a system that already “works.”

There are many many visions when it comes to treating patients, both in a hospital and out. And this was the first major issue that my brother and I tackled while speaking up as our father’s healthcare advocates.

The burden of diluted care

Who will be Dad's advocate when he is too tired or weak to speak up for himself? Technology could (and does) allow family members to better share the responsibility of looking after someone who is ill.

My brother and I spent much of our time in Texas talking to various surgeons, nurses, nursing students, social workers, and admin folks involved in our dad’s treatment. Whenever we thought we had a firm grip on what was going on, we would be thrown by additional information from someone else who just walked into the room. For example, it wasn’t until Dad was being discharged from the hospital that we first learned he had a bit of pneumonia. We were on our way to the airport by that point and left feeling as though Dad’s care was out of our hands. Surely there will always be some truth in that, but it is not an empowering bookend to the trip.

This lack of communication is an example of how diluted care takes its toll. During the three days we spent with Dad, we didn’t see any doctors or nurses on more than one occasion. Only one person – the discharge nurse – updated the whiteboard in his room to accurately reflect the correct date and assigned care providers.

One nurse came in to take Dad’s blood work and when I asked what it was for, she told me she wasn’t allowed to say. Under our own family’s circumstances, this kind of answer was unacceptable (Dad didn’t know what it was for either), and I shudder that I did accept her answer. Upon reflection, I know I did so because I was afraid. I was afraid that if I kicked up a fuss, my dad would receive lesser care.

What does this say about modern healthcare systems? The situation is eerily reminiscent of how most people now regard the TSA: a necessary evil for safe air travel. We put up with bad systems because the consequences of not putting up with them can be so severe. Surely this is not what healthcare providers want hospitals to be like (Dad joked, “It must be frustrating for them too with all their patients – I don’t know how many different people I was when I was I was there!”), and it is certainly not what patients and families want it to be either. But there it is.

Technology’s role

Dad seemed a little suspicious of the iPad at first but didn't hesitate to give it a go.

Mobile devices, the Internet, and social media have empowered people all over the world. I’m so glad that mhealth is “poised to explode” because we need the same innovation and empowerment to happen in healthcare as it has in other industries.

You can see how even from bed my dad was able to operate an iPhone and an iPad, playing Yahtzee with my nephew. Why couldn’t we craft the same engaging interactions to manage one’s health? I guess the answer is we can. We will. We are. But these solutions could not come soon enough, especially for the patient who is lying in bed right this second wondering how they are going to get a grip on their health.

Bless my dad for letting me share a bit of his story here. He once told me, “If it’s the truth as you see it, chase it down and rub it in the dirt.” The truth, the personal story, is easy to lose in healthcare, tucked away behind walls of patient rooms with people remaining very private and suspicious about sharing health data. This hurts patients at the same time that it protects them (which is why I love seeing Patients Like Me gaining momentum). Hopefully some of the insights from Dad’s story will continue to inform my work from behind-the-scenes of healthcare way beyond this sombre occasion. And maybe by sharing it here, it will inform others’ work as well.

Dad has cataracts so had a hard time seeing the small iPhone screen.

Still it delighted him in that he could touch the screen and simply make things happen, an empowering feeling when you are a patient and have control over little else.

The iPad was a better fit, because Dad could see it better. He also enjoyed the five-year-old helper he had showing him how to use it.

My nephew and me with Dad/Grandpa.

Most people have their own story and personal experiences with healthcare systems. What were your insights? How could your experience have been improved?


If this is your first introduction to my dad, you should know we once made a children’s book together. Dad wrote the story that I illustrated called Beto’s Burrito. Check it out and buy a copy online – 50% of the proceeds benefit the Centre for Addiction and Mental Health Foundation.

March 2, 2012

Guest post: Hacking Health in Montreal

Photo by Hacking Health. Anthony (left) and his teammates working on Remindr app.

Last weekend we sent one of our own over to Montreal to take part in Hacking Health, which is a fantastic initiative to bring clinicians, designers and developers together in a Startup-Weekend-like scenario to tackle some big health problems in an accelerated timeframe.

Anthony Mei was our representative at the event. He is relatively new at the Centre for Global eHealth Innovation, but willing to jump right in! I’ve found that willingness is absolutely necessary in acclimating to the healthcare world, but it’s also good evidence that Anthony’s self-assessed title, the “Swiss army knife of developers,” holds true.

“I’ve always been put on new and/or difficult problems where I have to learn stuff and then implement the solutions — and I like that type of thing.”

We’re super happy to have passionate folks like Anthony on our team, and even more excited he’s willing to share his experiences. So check it out — here’s Anthony’s basic rundown of the event:


Friday night

1. The Pitch. Everyone got together and heard about 35 different pitches for projects to work on and what type of people they needed. Each “pitcher” had two minutes to sell their idea, standing on a soapbox and using a projector. There was a website where people could put their ideas up before the event, but the main pitch is what would get people interested.

2. Form Groups. Immediately after the pitches were done, groups formed. This was a pretty organic process as people milled about looking for the project that they wanted to contribute to and just started talking with the group. I chose a project that had a focused and definite need as well as good ties to a patient base. Here’s a little video clip of Ryan Meili, a family doctor, talking about the problem at hand (he’s a very good speaker… apparently an MD as well as being involved in politics in Saskatoon):

3. Plan. Once we formed our group we started talking about what our goals should be. Not only were we strangers to each other, but throw into that the fact that we all had different professional backgrounds, and you have a very challenging task. We talked and planned for about four hours and called it quits a little after midnight.

Saturday

4. Work (starting bright and early at 8am)! For our group this involved a lot of talking about what the application needed to accomplish as well as what it would look like. We had the difficulty that two out of four hackers did not show up, so using (extreme) agile methodology, we collectively agreed that this was a project we were interested in pursuing outside of a single day, and that the most productive thing we could do was to focus on design and application workflow.

5. Get ready for project submission. Projects had to be written up and a presentation was prepared for 6pm. According to the website, there were 19 final projects.

6. Presentations. Each group made a short presentation of their project to show everyone what they did. This is when I made my exit, but there was some mixing and mingling afterwards.

Takeaways

  • Lots of ideas were presented and there were lots of people interested in working on them. Many clinicians flew in from all over Canada when they heard of the event. Talking to some of them, I think the idea of the event was very exciting because they see simple problems and don’t understand why they haven’t been solved.
  • I am still working with my group deciding what the next steps are. We are waiting for the clinician to take what we did back to his group in Saskatoon and let us know what they need to proceed.
  • All in all it was a very exciting event as I don’t think developers and clinicians get together that much to talk about solutions. I think the clinicians had lots of ideas but didn’t know how to solve them. The designers/developers like to solve problems, but they don’t know what the problems are. I think the goal of the event – to plant the seeds for bigger things – was reached since for many people, the big mysterious wall between IT and healthcare was taken down a notch.

Big thanks to Anthony for sharing the write-up of his experience. If like me you’d like to see Hacking Health come to Toronto, tweet to @hackinghealthca with the hash tag #HackingHealthTO or send them a message at http://hackinghealth.ca/#contact/en. Let’s make this happen.

To read more about the outcomes of the event and other projects, go here: http://projects.hackinghealth.ca/

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